Development of a disability measurement tool for juvenile. Perceptions of uncertainty scale, juvenile arthritis functional assessment reportparent, and child and adolescent measures included the childrens depression inventory, childrens uncertainty in illness scale, and the juvenile arthritis functional assessment reportchild. Low risk, moderate risk and high risk examples are also provided by way of illustration. Juvenile arthritis ja, also known as pediatric rheumatic disease, isnt a specific disease. A disability assessment tool, the juvenile arthritis functional assessment scale, was developed for, and validated in, patients with juvenile rheumatoid arthritis jra. Physical function assessment tools in pediatric rheumatology ncbi. P and a version that can be completed by the child jafar. Chaq to measure functional ability in patients with juvenile idiopathic arthritis on the level of individual items. Development of validated disease activity and damage. Request pdf on dec 1, 2006, sm padankatti and others published a6 development of a disability measurement tool for juvenile inflammatory arthritis. Every gift to the arthritis foundation will help people with arthritis across the u. Its an umbrella term to describe the inflammatory and rheumatic diseases that develop in children under the age of 16. Disease activity core set measures national institute of. Jafas with a questionnairebased instrument childhood health assessment questionnaire.
Each question is rated on a fourpoint scale of difficulty. The jafar was derived from the aims, the haq and the mcmaster health index questionnaire. Juvenile risk assessment scale jras the following is a list of the criteria in the juvenile risk assessment scale jras, along with an explanation of how eac h is used. The juvenile arthritis multidimensional assessment report jamar. It may be limited to a few joints pauciarticular, many joints polyarticular or be associated with systemic symptoms systemic. Juvenile arthritis functional assessment scale jafas general description purpose. A family of measures was created around the juvenile arthritis functional assessment report jafar 10. The greek version of the juvenile arthritis multidimensional. The acr endorses five rheumatoid arthritis ra disease activity measures, as well as three ra functional status assessment measures for use in routine clinical practice. Juvenile arthritis affects nearly 300,000 kids and teens in the united states. Whether it is supporting cuttingedge research, 247 access to oneonone support, resources and tools for daily living, and more, your gift will be lifechanging.
Juvenile arthritis quality of life questionnaire for participants. The assessment of disease activity in juvenile chronic in. Juvenile idiopathic arthritis jia can affect a childs performance across a range of activities. A family of measures was created around the juvenile arthritis functional assessment report jafar. Diseasespecific measure of physical, social, and emotional wellbeing designed as a measure of outcome in arthritis 1 content. A comparison of the measurement properties of the juvenile. The jafs was found to possess face and content validity, good reliability, strong discriminative. Jafar, juvenile arthritis functional assessment scale jafas. Other measures of functional ability used in jia include the juvenile arthritis functional assessment report jafar, juvenile arthritis selfreport index, physical activity questionnaire, nih promis physical function instruments, pediatric outcomes data collection instrument, and activities scale for kids see table 1. It is associated with negative impact on the patients quality of life due to weakness, functional disability, joint contractures. The assessment of overall health status of a child with juvenile rheumatoid arthritis jra is complex and. Using patientreported outcome measures to capture the.
Pdf physical function assessment tools in pediatric rheumatology. The responses are in the form of 3point scales, and total scores range from 046, where lower scores indicate better function. Performance of the preliminary definition of improvement. Construct validity of the scales, expressed as the non. Burden and cost of illness in patients with juvenile. The juvenile arthritis functional assessment scale daniel j. Child health questionnaire divided into physical and psychosocial health. The juvenile arthritis functional assessment report jafar, a reliable and valid 23item scale evaluating physical functional ability has both child and parent reports. Functional assessment scale jafas, juvenile arthritis functional status index jasi, and.
The juvenile arthritis functional assessment scale. Juvenile arthritis multidimensional assessment report jamar 2010 jamar original by a. Furthermore, largescale clinical studies are needed to validate our findings and to evaluate the longterm outcomes. Only the juvenile arthritis functional assessment scale jafas and the childhood health assessment questionnaire c. The effects of juvenile rheumatoid arthritis on functional. Dramatically lower costs reduce adjudication rates decrease recidivism address overrepresentation minimize assessment wait time youth like it. Routine assessments of disease activity and functional status are a key part of highquality rheumatologic care. The juvenile arthritis functional assessment report jafar. Sleep and its relationship to pain, dysfunction, and. Utility of the illness intrusiveness scale in parents of. Get involved arthritis foundation symptoms treatments. To provide a more standardized approach arthritis jca clinical trials is commonly based on a in choosing endpoints for clinical trials in jca, a core set.
Haq were developed specifically for children with juvenile arthritis. Juvenile idiopathic arthritis jia is the most common chronic childhood rheumatic disease, affecting an estimated 24,000 canadian children 3 out of every younger than 18 years. Makes them feel comfortable makes them feel competent. Childhood health assessment questionnaire for parents. Disease activity and damage in juvenile idiopathic. Pdf development of a disability measurement tool for. Agreement between physicians and parents in rating. A comparison of the measurement properties of the juvenile arthritis.
Assessing outcome in juvenile idiopathic arthritis sta healthcare. Measurement of global functional performance in patients. Responsiveness, assessment, outcome measures, juvenile chronic arthritis. A6 development of a disability measurement tool for. Juvenile arthritis functional assessment scale juvenile arthritis functional assessment report for children jafarc ayala malachpines burnout measure ralph marino, md capabilities of upper extremity cue catherine mcgregor, phd amphetamine cessation symptom assessment robert meenan, md arthritis impact measurement scales 2 aims2. To measure disability in children with juvenile rheumatoid arthritis 1. These examples are in no way intended to be exclusive. Responsiveness of outcome measures in juvenile chronic. Juvenile rheumatoid arthritisassessment springerlink. We compared the measurement properties of a performance test juvenile arthritis functional assessment scale.
Juvenile idiopathic arthritis disease status functional ability. Calcinosis is a feared complication of jdm that may be seen in up to 40% of children with jdm. Lovell, steven howe, edith shear, sandra hartner, gerri mcgirr, marion schulte, and joseph levinson a disability assessment tool, the juvenile arthri tis functional assessment scale, was developed for, and validated in, patients with juvenile rheumatoid arthritis jra. Physical function assessment tools in pediatric rheumatology. The relationship between impairments in joint function and. To set up a functional measure more feasible than chaq for routine use in standard clinical care of children with jia, filocamo and coworkers developed a shorter and simpler 15item questionnaire, the juvenile arthritis functionality scale jafs. As performance tests are time consuming and require specific equipment and trained assessors, it is relevant to know whether they have an. Abatacept in the treatment of juvenile dermatomyositis. The rheumatoid arthritis severity scale rass was designed to help doctors determine disease activity, functional impairment, and physical damage caused by ra. Diseasespecific measure of physical, social, and emotional wellbeing designed as a measure of outcome in arthritis keywords. Patientparent global activity pdf format 321kb ruperto n, ravelli a, pistorio a, ferriani v, calvo i, ganser g. Meenan, dean, boston university school of public health subject.
Measuring the function of children with juvenile arthritis. Juvenile arthritis functional assessment scale jafas and juvenile arthritis. Outcome measures in pediatric rheumatology springerlink. Scales used for assessment of physical function and hrqol in. Haq, juvenile arthritis functional assessment scale jafas. Pdf a comparison of the measurement properties of the. Juvenile rheumatoid arthritis jra, also known as juvenile idiopathic arthritis jia, is a form of arthritis that starts before 17 years of age and affects 1 or more joints. Activities of daily living considered by expert opinion to be important and often difficult for children with arthritis. Standards for this 10item tool were developed using the scores of 63 normal. This partially validated tool measures the global evaluation by the patient, or by the parent if the patient is a minor, of the patients overall disease activity at the time of assessment using a 10 cm.
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